 | Courtney Ecker Chair of Advisory Council Courtney is a wife and mother of two, a commuter from Elgin County, originally from Halifax, Nova Scotia and the Marketing Manager at Fanshawe College. More importantly, Courtney is the proud mom to a daughter living with Epilepsy and is dedicated to giving back in any way she can. She is a parent advisor for the Shared Decision Making project and also sits on a marketing advisory group for the Children’s Health Foundation. |
 | Dr. Craig Campbell MD MSC FRCPC Physician lead Head, Division of Pediatric Neurology Dr. Campbell’s research interests are in the areas of cerebral palsy and paediatric neuromuscular disease, and he is highly regarded for his collaborative leadership approach. Lead physician for Shared Decision Making. |
 | Bonnie Wooten Decision Coach Bonnie is the Shared Decision Making Implementation Consultant/Decision Coach, offering a supportive, neutral and non-directive process by providing coaching face-to-face, on an individual or group basis, by telephone, email, online or through telehealth. Facilitates access to evidence-based information, clarifies decisions and monitors patient’s needs. Verifies understanding, clarifies values, builds skills in deliberation, communication, and accessing support. Monitors and facilitates progress in decision making and develops the patient’s skills in understanding their options, preparing for a consultation and implementing change. Areas of Interest: Family & Women’s Health & Project Management |
 | Phil Singeris Phil is a lifelong Londoner and proud husband and father of 2 children. He is a strong advocate of Children's Hospital Western Ontario and Children's Health Research Institute, and will continue to work tirelessly to support patient care, family advocacy and Neuromuscular Disease Research. Phil along with the amazing support of family, friends and Dr. Craig Campbell was instrumental in launching the William Singeris Centre for Myotonic Dystrophy Research here in London, Ontario in 2005. |
 | Rhonda Teichrob Community Representative Rhonda Teichrob is a social worker at Thames Valley Children’s Centre currently working in specialty clinic with neuromuscular, cerebral palsy and Rett syndrome teams. |
 | Jennifer Smith Community Representative Jennifer Smith is the Municipal Policy Specialist for City of London, Child & Youth Network. Jennifer works with 170+ organizations and individuals in London committed to increasing and improving outcomes for children, youth, and families. She is committed to collaborative approaches, such as shared decision making to meet effective outcomes. |
 | Marie-Helene Bolduc Provincial Representative Marie-Helene Bolduc VP Program and Services at MDC provides overall strategic and operational direction for all elements of MDC’s programs and services including the system navigation program that enables Service Specialists to work alongside individuals and their families, as well as health care professionals to navigate complicated systems to access the right resources that enhance the quality of life for people affected by neuromuscular disorders. |
 | Dr. Andrea Andrade Physician Representative Associate Professor of Pediatrics and CNS Areas of interest: Drug-resistant epilepsy, epilepsy surgery, invasive monitoring (sub-durals and SEEG), and neuromodulation in epilepsy |
 | Dr. Kevin Coughlin Physician Representative Dr. Coughlin is a Neonatologist and Associate Professor at the University of Western Ontario, Schulich School of Medicine and Dentistry. He serves as the Neonatal Medical Director of the Maternal Newborn Child Youth Network of Southwestern Ontario and Medical Director of the Neonatal Developmental Follow-up Clinic at Children’s Hospital, London health Sciences Centre. |
