Stem cell transplantation is a time of mixed hope and anxiety. You may cope very well, but may also develop feelings of anxiety, loneliness, depression, and boredom. You may also worry about family members or feel angry and frustrated with being ill.
The team caring for you is aware of these kinds of feelings and concerns. These feelings are normal. Sharing your concerns with team members will help you to cope with these problems. The support of family and friends is also very important as it provides company and comfort for you during your hospital stay.
Talking with other patients before your transplant can also be helpful. The social worker can arrange for you to meet with a former patient. Your physician and the nurse practitioner can provide more information to help you prepare for your transplant.
Some tips that previous patients and families have found helpful during the stem cell transplant experience.
Tips for patients:
- Share your feelings with those you feel close to. It is often helpful to talk about your feelings with someone and know that you are being listened to. You can get help from a social worker or spiritual care provider if you need more support.
- Get information. Don't be afraid to ask questions. Write things down or use a tape recorder to help you remember important questions.
- Keep a record of your blood counts and medications for later use (check-ups, readmissions, etc.).
- Take a tour of the unit and the room you will be staying in during your transplant.
- Remember to take one day at a time.
- Make the room your own.
- Try to eat something every day, even if it is only a few spoonfuls.
- Get dressed every day, if you are able.
- Manage your own care, even your medications. You will gain a sense of control.
- Keep physically active. This is a great way to reduce stress. Being active can improve your mood and keep you healthy. Take short walks.
Tips for support persons:
- Ask other family and friends for their support for you and your loved one. They will be glad to help.
- Realize that your needs are important – Get plenty of rest, eat properly and take time out for other activities to maintain your own health. Take a day off now and then.
- Your loved one may experience some emotional changes such as anger, stress, and depression. These changes may cause you some concern but are often temporary. Remember your loved one may not always feel upbeat and positive, and that's okay.
- You may at times feel helpless. At these times, please remember that being there to offer love and support is often all that is needed. Listen to what they are saying.
- Feel free to ask any questions of the medical staff.
- Be understanding of your loved one’s needs and challenges. Accept setbacks without judgement or criticism.
- Help your loved one settle their financial and personal affairs prior to the transplant through advanced care planning. Although a stem cell transplant provides renewed hope, it is important to realize that patient outcomes vary during the course of treatment.
Spiritual care
Spiritual care can help you maintain your health and hope during challenging times. It can help you find meaning, value and connection, especially during difficult times. Spiritual care professionals can help you express your feelings and concerns in a way that honour your values and beliefs.
Ask a member of your health care team if you need them to contact a spiritual care professional for you.
